We have a word for children who have lost their parents, but no equivalent for parents who have faced the agony of losing a child. Tessa Prebble writes about the limbo of being a mother with no child to parent, 18 months after the death of her daughter Eva.

Many parents make the reasonable decision to terminate their pregnancy following an in utero diagnosis of Down Syndrome. But as more sophisticated tests make it easier and less risky to diagnose early, Tessa Prebble wonders whether we've really thought through the consequences.

For Tessa Prebble, whose own daughter was born with congenital issues, the story of Aria and her parents evokes only sadness – and anger at a system that let a struggling family down.