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Sunday Essay Sophie Watson Feature image

The Sunday EssayMarch 27, 2022

The Sunday Essay: 11 years of waiting

Sunday Essay Sophie Watson Feature image

I assumed I would be better the next day or the next week. I wasn’t.

The Sunday Essay is made possible thanks to the support of Creative New Zealand

Original illustrations by Sophie Watson

2009

I’m living in the Dominican Republic, working with kids living in extreme poverty. In my spare time I make friendship bracelets with the kids, eat ice cream and dance to reggaeton.

On a work trip to Central America I get a fever, severe back pain and diarrhoea. I assume I’m in pain from sleeping on a plastic kids mattress for a year.

A week after returning to the DR, I’m diagnosed with amoebas and all sorts of parasites and given kids medication. Every time I eat, the abdominal pain is so severe that I lie down, curl up into a ball and roll around crying. The doctor reassures me that it’s just the amoebas.

I’m no medical professional but I’m pretty sure that daily stabbing abdominal pain, nausea, pain during sex, diarhhoea six times a day, back and neck pain, headaches and fatigue are not normal.

I assume I’ll be better tomorrow or next week. It lasts 11 years.

2011

I come home to Aotearoa 10 kilos lighter and receive compliments on how well I look. One old friend says he’d heard that I’d gotten “all skinny and sexy”.

Soon enough malabsorption kicks in, meaning I can’t properly absorb all the nutrients from the food I eat. I put the weight back on and the compliments stop.

I spend my savings on doctors, tests, medicine, supplements, electrolytes, treatment plans, therapy and specialist appointments. With all that money I could have bought a whare, or at least a really nice car.

While my pain worsens, my meditation and yoga practice gets stronger, stopping me from completely losing hope.

2017

It takes six years but eventually my GP sends me to a gastro specialist for a colonoscopy. I am so excited to finally get some answers.

After the surgery I’m told that I don’t have cancer or chron’s, and am instead diagnosed with IBS, which the specialist explains is the diagnosis given for gastrointestinal issues when there is no other clear diagnosis. When I ask what she can offer to help manage my chronic abdominal pain, diarrhoea and fatigue, she recommends that I take imodium everyday – an anti-diarrhoea pill. I sit in her office, crying, and when I ask if there’s anything else she can do, she offers to write a prescription for depression meds despite the fact that I’m not depressed. Yet.

Soon enough, I return to my GP as fatigue is making it hard for me to function. After years of trying to help, he suggests that I go on the sickness benefit. I can’t give up my work supporting rangatahi with The Kindness Institute. My limited energy goes into it and I feel guilty for not having time for my friends or whānau. And I’m resentful that almost every time I have more than two or three beers I feel like shit for weeks.

My good friends are incredible and without them, my mum, my mother-in-law, my therapist and my boyfriend, I wouldn’t get through it. My boyfriend sacrifices almost all of his free time to take care of me.

2018

Ten years in, my work is going better than ever. I’ve started The Kindness Institute and we’ve worked with so many incredible youth through our mental health kaupapa. I receive the order of merit and around the same time things take a turn for the worse with my health.

I end up in A&E with 10/10 abdominal pain and I am turned away because they’re “full and closing soon”. I’m in agony for weeks. I don’t have the energy to write a formal complaint but don’t worry Auckland DHB, it’s coming.

2019

I become hapu and go through a painful pregnancy loss. The pain lasts for months and I become depressed – grieving the loss of the baby and taking a massive physical hit. I’m unable to do much other than sleep, and I feel trapped in my body. It takes about six months until I can go for a walk and not double over in pain.

I end up having around three days a month when I can function normally. The rest of the time I’m in pain and largely bed-bound. After seeing countless doctors, I see two naturopaths when I’m just about at breaking point. One fat shames me and the other fully invests in my recovery and recommends I get a laparoscopy to see if I have endometriosis. Endo is an inflammatory disease that can include period pain, pelvic pain, bowel problems and sub-fertility or infertility. Sometimes endo can be misdiagnosed as other conditions, like IBS.

2020

I find a gynaecologist and the gynaecologist finds stage three, going on stage four, endometriosis throughout my organs. I can’t believe it. After 10 years of no concrete answers, I am diagnosed with endo and told that my health has been seriously mismanaged.

The recovery is hectic and the pain seems worse than before. The pain medication makes my brain feel weird. I can’t do the smallest tasks like put on my socks. My boyfriend’s had to take weeks off work to care for me and I am, once again, pretty depressed.

Three months after the surgery, I’m so excited when I get hapu again but it leads to another miscarriage. Things aren’t perfect, but eventually I start to get my energy back and feel much better. Cutting gluten, dairy and soy helps, but costs a fortune finding the right specialists – nutritionist, therapist, naturopath and physical therapist just to manage the disease.

I try CBD oil and it’s the only thing that lowers my pain without any side effects.

I’m fortunate to be able to advocate for myself and to have shitloads of support, yet it still took me 11 years, my life savings and private health insurance to get a diagnosis.

2021

After all these years and two miscarriages, I give birth to a beautiful baby girl. While I’m hapu, all my endo symptoms completely disappear. Even though the disease is one of the leading causes of infertility, women have to wait years for surgery and don’t receive any ongoing care.

2022

As a girl I was told that pain during sex is normal (it isn’t) and that period pain is simply part of being a woman.

No one taught us in school that if your period pain shouldn’t stop you from doing everyday activities. According to Endometriosis NZ, It still takes more than eight years to get a diagnosis from first presenting with symptoms. Lots of wahine might think that their symptoms are normal, and be too whakamā to seek help or be misdiagnosed.

Early on, a friend suggested that I might have endo, but that doctors dismissed it because my periods were regular. I met a lot of lovely health professionals along the way but not many who looked beyond the IBS diagnosis.

One in ten women suffer from endometriosis, that’s roughly 190 million women worldwide. According to Endometriosis NZ, 27% of girls aged 13-18 years are absent from school in Aotearoa, because of distressing symptoms relating to their period. Early intervention is essential as menstrual disorders in rangatahi can have a significant impact on their physical and mental health and seriously compromise schooling, quality of life and future fertility.

2022

My health isn’t perfect and some of the pain is back, but I feel better than I have in years. After more than a decade of being told that I had no reason to feel the things I was feeling, I’m still learning to trust my body.


Love The Sunday Essay series? Be sure to check out The Sunday Essay postcard set over in The Spinoff shop. The set includes 10 original illustrations from the series with insight from the artists. 

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Illustration by Laya Rose.
Illustration by Laya Rose.

The Sunday EssayMarch 20, 2022

The Sunday Essay: At 42

Illustration by Laya Rose.
Illustration by Laya Rose.

In this house you can become everything you want to be. Everything you are meant to be.

The Sunday Essay is made possible thanks to the support of Creative New Zealand

Original illustrations by Laya Rose.

~

 

“…….what has the deepest and most permanent effect upon oneself and one’s way of living is the house in which one lives.”

Leonard Woolf, Downhill All the Way: An Autobiography

 

I was stoned the day I bought 42.

With a baby in my backpack and a thousand different stories no one wanted to hear, I had arrived at my parents’ house in Hunterville after a four-year adventure in London. My teenage brother, keen to show off in his recently acquired 1964 Pontiac Parrisienne Pillarless, suggested a quick spin to Palmerston North.

A couple of joints later as we aimlessly roamed the streets, we stopped to look at photos of houses for sale in a real estate office window. An agent came out and offered to drive us around to look at some of them. They were boring houses in boring suburbs representing a life I was never going to live.

Then we stopped at 42.

The house was in the middle of the city and had been on the market for a few years. Circa 1907 it was a derelict colonial cottage originally built for railway workers as the train line used to run into the city centre.

The bathroom and laundry were inside an old tin shed in the backyard. Beside it a lone plum tree was the only sign of life. The interior walls of the house were lined with ripped scrim. In two of the rooms, the external walls were so rotten I could put my hand through to the outside. The kitchen was the size of a small closet. There was no available heating source.

The ornate plaster ceilings in the front rooms were stained nicotine yellow. My stoned brain envisioned painting them ice white and gazing at them forever.

“How much?”

“$34,000.”

I moved in a few weeks later. A cupboard door fell off its hinges and smashed my nose. I lit a joint, ignored the overflowing nappy bucket and took the baby out to explore.

In 1986, I was 22 years old and squatting in a council flat on a notorious drug-dealing estate in Brixton with my baby. I was settled enough skirting the fringes of a radical left-wing life when my mother wrote to say the Housing Corporation was giving out low interest mortgages to single parents to buy their own homes.

I was reluctant to return to New Zealand, but the baby was mobile and there was no safe space outside for us to play. The closest playground to the estate was strewn with used needles and dogshit and I wanted my son to grow up with outdoor freedom. There was also no upward financial movement for me, surviving on a benefit with no educational qualifications.

The land of sea and sky and sun seemed like a good option for both of us.

Another generous gesture from the New Zealand government at that time was to pay for single parents to attend university. No one within my extended whānau had ever set foot in a university.

I had completely failed high school. My English teacher had graded me EE and said, “there is not one pleasant thing I can say about such a pupil”.

Expectations for me had not been high: a low-paid manual labour job of some kind till I married and had a few kids. But I had deftly side stepped that future and escaped to London on a one-way ticket as soon as I could scrape together enough cash.

~

At 42, I sat on the sunny front veranda surrounded by books and study guides and began to expand my world in a different way. There was much to absorb. Including how to survive within a society where I was a despised and ostracised single mother living off a state-funded benefit.

At 42, I chainsawed internal walls to create bigger room spaces. I nailed gib board over the scrim and plastered over the joins. Spare cash transformed into cans of paint. Behind a cupboard I discovered a functional open fireplace.

The bathroom shed collapsed in a storm but the clawfoot bath remained staunchly resolute, so I moved it into the new bathroom.  This one was attached to the house.

I clambered onto the roof on early summer mornings and replaced rusty sheets of iron. On a clear-sky day, I could see both the Ruahine and the Tararua Ranges and I imagined myself walking along the top of the ridges.

The plum tree blossomed and grew two hundred bags of fat plums that I sold at the market. Bosch created a dishwasher that fitted perfectly into a closet-sized kitchen.

Men I liked came and went. Some were helpful. Most wanted something I couldn’t give.

I have always been attracted to good looking men.

42 wanted to frame them and hang them on the wall to look at.

She has aesthetically good taste.

The year after my father killed himself, I couldn’t study. I had morphed into an A+ student and was on track for a scholarship.  Instead, I spent the year drinking whiskey and losing my mind.

Outside of 42 I could hear the noise of the city as 90,000 people went about their daily lives. No one came to visit us because they didn’t know what to say and neither did I.

It’s hard to tell a story about someone who murders themselves, so I painted the interior walls black. For a long time, we lived inside a muted candlelit cave.

42 likes to creak and moan but her solid kauri strength held us tight until the light returned.

~

I met someone who was more than an abstract wall hanging and for a moment considered leaving 42. He wanted to advance his career on the other side of the world. If we were to go too, I would have to become a wife. I was fading in visibility. He had used my best ideas in his academic thesis and gained accolades while I ceased to exist.

42 always demands your own truth be lived and refused to let me leave.

~

Outside of 42’s black picket fence, a patriarchal storm was raging. There was no solid ground out there for me. Inside the fence an alternate universe was thriving. I repainted the walls scarlet red, terracotta orange and sunshine yellow. Each brush stroke moved me closer to myself and gave me a sense of belonging for the first time in my life.

At 42 you can become everything you want to be and everything you are meant to be.

All the women that I can name within my whakapapa have married abusive men. Men who were cruel to their families. Men who didn’t love and nurture their children.

42 helped me cast off the ancestral trauma imprinted on my DNA and to rebuild myself.

After I returned home from a creative summer in New York City, I painted the interior walls art-gallery white and the ornate ceilings metallic silver. The dark wooden antique furniture didn’t welcome the new light, so I replaced it all with steel and glass and kitsch furniture and appliances.

In 2006 a new baby was born at 42, the same year my eldest son left home. I buried the placenta under the plum tree. His father whom I barely knew moved into the house next door, number 38. There is no number 40.

40 is a liminal space where our relationship continues to invent itself.

42 contains my multitudes without expectations.

I am a Pākehā girl who grew up in a Māori community.

I am a rural girl and a cosmopolitan international traveller.

I am a working-class woman failing to find a comfortable fit in the middle class.

I am the ostracised single mother on a benefit lining up at the food bank.

I am an over-educated woman who earns a living listening to people’s sad stories and who trades shares for fun.

I am a fearless independent woman who hikes alone over the top of mountain ranges.

I am the daughter of diametrically opposed parents. My father, a war traumatised bipolar alcoholic; my mother, a staunch believer in the one Catholic Apostolic Church.

I am the mother of two children who know exactly who they are.

42 gave them a stable home with a solid foundation. Raised with love and clear vision they leave the confines of the black picket fence and negotiate with the world on their own terms. They are free to be whoever and whatever they choose.

As my ovaries wither and die, I tattoo my stories on my body.

Tūī, pīwakawaka, kōwhai and kākābeak wrap around my calf muscles. Nebulae rage from my forearm.

42 stands strong beside a purple magnolia tree, her doorway shining a welcoming light from my upper arm.

“No whea koe?”

No te wha tekau ma rua ahau.”

This house on this small piece of land in the centre of Papaioea is the only place in this world I belong.

 

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