Image: Tina Tiller
Image: Tina Tiller

SocietyFebruary 10, 2022

Asians aren’t as healthy as you think

Image: Tina Tiller
Image: Tina Tiller

Asians in New Zealand have long felt ignored in health policies, despite being our fastest-growing minority. Is it time we had another think about Asian health? Naomii Seah investigates. 

Asian people live for a really long time. Asian people have less heart disease. Asian people are less likely to be alcoholics. Asian people eat low-carb, low-fat, low-sodium diets and we should all eat like them. Asian people are healthy. 

Articles touting the superior health status of Asian people are a dime a dozen. We’ve all seen clickbait headlines about someone’s grandmother in rural Japan who’s lived to 112. Follow this link to learn her secret. 

Though some may characterise this as a positive stereotype, it too comes with consequences. Because Asians overall are thought to have good health outcomes, there’s a distinct lack of attention paid to Asians’ needs in the healthcare sector. 

But who cares? I hear you ask. Didn’t you just say Asians are generally healthy? 

It’s true: Asians as an aggregate group have statistically good health outcomes in comparison to other major ethnic groups. However, when you disaggregate that group, some Asian ethnicities are more prone to certain conditions than others. For example, a 2012 report on the Asian population in Auckland showed that the Indian population has higher rates of cardiovascular disease, with mortality rates landing above Pākehā, but below Māori and Pasifika. Asians as a whole also have a higher rate of diabetes than the Pākehā population, and the Indian population has the highest rate of diabetes in New Zealand. Mortality rates for diabetes again land above Pākehā, but below Māori and Pasifika peoples. The 2012 report also found risk of stroke to be higher in all Asian populations than Pākehā, but lower than Māori and Pasifika. It seems a trend is emerging.

We may not even be getting the full picture of Asian health in New Zealand. A 2015 report commissioned by Runanga Whakapiki Ake i te Hauora o Aotearoa, the Health Promotion Forum of New Zealand, notes that “stereotypes and the ‘averaging effect’ may have boosted the health status of Asians in New Zealand beyond reality”.  

Additionally, the last major review of Asian health in New Zealand was done in 2016, which included data from 2002-03, 2006-07, and 2011-13. Over that time, the Asian population in New Zealand almost doubled, from 6% to 11% of the total population. As of 2018, Asians make up 16% of the total population. That number is only set to grow. Current projections show that Asians will become, as an aggregate, the second largest ethnic group in New Zealand by 2030, and are likely to make up a quarter of the population by 2043. 

Although Asians are set to make up a quarter of New Zealand’s population, we have the lowest rates of engagement with the health system out of any ethnic group. The 2016 review found “Asian adults were less likely to have a usual health practitioner or service to visit when unwell, compared to non-Asians”. Additionally, “Asian groups generally were less likely to use all types of public hospital services.” 

The 2021 New Zealand Asian wellbeing and mental health survey, led by Asian Family Services (AFS), further found 47.9% of Asians “cannot access language and/or cultural support regularly when they use health services in New Zealand”. That’s over 338,900 people. 

A recent study led by Dr Roshini Peiris-John at the University of Auckland further highlights this issue – it found one in five Asian youth were forgoing healthcare. In other words, they did not access healthcare even when it was needed. 

In New Zealand, this systemic inequity for Asian New Zealanders exists in the broader landscape of a health system created by and for Pākehā people, using models of care that alienate vulnerable and already marginalised groups. This is reflected in the health outcomes of the total population. Pākehā people consistently report the best health outcomes in New Zealand. It begs the question – why is everyone else being left behind?

Barriers to access

“Imagine trying to tell a complete stranger what you’re thinking, your deepest thoughts, but in a language that’s not your native tongue. It’s incredibly stressful.” 

Denzel Chung is a PhD student carrying out research into Chinese health in New Zealand with the Otago School of Medicine. From interviews with health professionals and the Chinese community, Chung says the biggest problems with access to healthcare are language barriers and a lack of culturally appropriate services. 

Denzel Chung (Photo: Supplied)

“Cultural issues around stigma, awareness [of available services] and language barriers make people reluctant or less likely to access those services,” says Chung. He notes that language barriers predominantly affect the older Asian population, and recent migrants. 

A “very, very common” phenomenon, especially in the Chinese community, is “getting family friends, [or] your own children, to interpret, which opens up a whole new set of problems”, says Chung. This includes privacy issues, and the fact that one might not necessarily want to share one’s health problems with friends or children. When that’s your only access to a health service, your health needs may remain unaddressed. A number of DHBs do fund interpreting services, but Chung says they’re “poorly resourced”. which means they tend to work more “in theory” than in practice. This means the reality for many Asians speaking English as a second language is that health services are simply inaccessible. 

Additionally, Chung notes that for many in the Chinese community there’s a lack of understanding of the New Zealand health system, especially around access to specialist care. The referral system is unfamiliar to many new migrants, and the steps involved can be overwhelming for patients when English is their second language.

Dr Carlos Lam Yang, a GP in the Auckland suburb of Flat Bush, has seen this first-hand. “I’ve had lots of experience personally, assisting family members and relatives through the healthcare system,” says Lam Yang. 

Dr Carlos Lam Yang (Photo: Supplied)

He cites an incident that occurred when he was working at an urgent care practice, where a young patient came in with her father in the evening; they spoke a dialect of Cantonese. Lam Yang, who speaks Cantonese himself, found it difficult to understand, saying he only got “bits and pieces” of their conversation. He managed to make out that the girl was having a psychotic episode, and he had to refer her to Middlemore hospital. 

“They weren’t familiar with the healthcare system,” says Lam Yang. “They didn’t even know where Middlemore hospital was.” 

He accompanied them to psychiatric services once his shift had ended. Once they arrived, Lam Yang found all the forms were in English. “There wasn’t anything there in any other languages, not even in te reo Māori for that measure,” says Lam Yang, who adds that the Pākehā receptionist wasn’t forthcoming. Lam Yang helped them translate their forms. They then had further issues finding the emergency department – again, all the signage was in English.  

“This is an example of where the system fails,” says Lam Yang, who notes that although there are many Asian healthcare providers, “the actual system itself is not geared to deal with cultures who don’t speak English”. 

“The government is not really paying attention to population groups that are burgeoning in size; they have healthcare needs too. That definitely needs to be urgently addressed, otherwise, we’re going to have a very underserved population.” 

Experiences of healthcare

“When accessing health services, a lot of Asians’ first experience is that they don’t feel they are being heard or understood.” 

Ivan Yeo is the deputy director and public health lead for Asian Family Services. He notes that for the younger generation in particular, cultural differences might present a larger barrier to accessing health services than is recognised. 

Ivan Yeo (Photo: Supplied)

He points to the growing proportion of second-and-above-generation Asian-New Zealanders, many of whom speak perfect English in a New Zealand accent, yet may not be able to articulate their cultural needs.

“The first impression [to a healthcare professional] is, aw, you’re a Kiwi,” says Yeo, “so their cultural needs may not be taken into consideration.”

“There’s an individualistic approach in the Western health system which actually conflicts with a lot of Asian cultures, which [are more] collective.” 

Yeo says that he’s seen this lead to an alienation of young Asians from the healthcare system. When family members’ views conflict with individual advice, they “won’t want their kids to go back and see that GP again”. 

Chung agrees, noting that “the bigger issue [with the younger Asian population] is trying to get their family on board. It’s not as simple as going off and doing your own thing, going to get your own diagnosis. It’s a lot more collectivistic. With family involvement, there’s a lot more clash with different cultural views, and how to seek help, and when you shouldn’t be seeking help as well.” 

Lovely Dizon, a PhD candidate at the Auckland medical school researching Asian health, has also seen this cultural dissonance pop up in her research. She notes that many healthcare practitioners may make “assumptions about family” when treating the younger Asian community. “In our culture, you can’t exactly stand up to our parents and grandparents… Eurocentric systems and thinking about families don’t work for Asians.”  

Lovely Dizon (Photo: Supplied)

“The population is changing,” Yeo continues, “but a lot of health practices aren’t catching up.” He says he’d like to see the system responding to younger Asians in New Zealand in “a more culturally appropriate way”. 

Arshveen Hora, a student at the University of Auckland, says that in their experience “the lack of cultural understanding in health professionals is really appalling.” Additionally, they note that their health issues have often been dismissed. 

Indira Fernando has had similar experiences with health professionals dismissing her symptoms, although she notes she doesn’t know “how much of this is that I’m brown, how much of this is that I’m a woman, or how much of this is just back luck”. Recently, she developed kidney pain and was taken to Dunedin Public Hospital, where she was told “there’s nothing wrong with you, the blood in your urine is just your period, go home”. She said the experience made her hesitant to go back to the hospital, and caused her to delay seeking medical treatment for three days. When she finally visited the hospital in Wellington, they found three kidney stones. 

“The exact same thing happened with my mum,” Fernando continues. “She turned up to the hospital with kidney pain, was sent home, and showed up the next day because she was in agony – she had to have a procedure to have [her kidney stones] removed.” 

Stigmatisation and mental health

“We don’t need to cost more lives to make a change,” says Dr Kelly Feng, national director of AFS. 

Feng points to the worrying statistics in the organisation’s 2021 Asian wellbeing and mental health survey, which found 44.4% of Asian people in New Zealand were experiencing depressive symptoms. 

“Mental health issues are so real, and people [are] realising they can’t really cope any more,” says Feng. “So they call us because we’re doing a lot of social media promotion. But we haven’t got increased capacity to cope with the demand.” 

Dr Kelly Feng (Photo: Supplied)

Feng notes that their service sees a lot of “late presentation”, which means that people have delayed seeking treatment until their mental health needs become urgent. 

“Stigmatisation plays a huge part for our Asian people – there’s a culture and the shame [of wanting] to cope within the family as much as they can.” Feng further notes that a lack of understanding of how mental health services work is also a challenge for the Asian population. 

And perhaps it’s not surprising that mental health services are stretched beyond capacity – discrimination against Asian people has risen in recent years. The 2020 Asian wellbeing survey by AFS found 16.8% of Asian people in New Zealand had recently suffered discrimination. This reflects the 2016 overview of Asian health, which found “Chinese and other Asians were most likely of all ethnic groups to ever have been a victim of an ethnically motivated verbal attack”. 

From May to July 2020, the AFS helpline offered in seven Asian languages experienced a 150% surge in calls, and counselling sessions booked for Asian patients increased 138%. 

Feng notes that AFS is currently able to provide three free counselling sessions, but then they need to refer patients on. “It’s very limited, there’s not many people we can refer them to, [especially] if they prefer to speak to a counsellor or clinician who knows their culture and speaks their language.” 

The other service available is the AFS-run Asian wellbeing service, which offers multilingual and culturally diverse services. But it’s currently a user-pays service, and “that’s not good enough,” says Feng. 

Feng says she’d like to see recognition that “Asians are a vulnerable population as migrants, and [we] need to do something about it”. She notes that some areas of Auckland have an Asian population of over 50%, “but if you’re looking at primary mental health services and mental health services in secondary care, there’s nothing matching with the population base at all”. 

Additionally, the 2021 survey found that 98.7% of the Asian population believes the public holds negative stereotypes of people with mental illnesses, and that the stigma associated with mental health was one of the biggest reasons Asians didn’t seek support. Feng would like to see this stigma in the Asian community addressed. 

Dr Roshini Peiris-John, who led the study on Asian youth forgoing healthcare, says she suspects another barrier to seeking help is stereotypes held about Asians. She says her sons spoke about the reluctance to seek help from school counsellors because “Asians are perfect, hardworking, clever, fastidious. And when they’re feeling down or not good about themselves there’s an aversion to go and talk to somebody, because of the approach in response. 

“There’s a feeling amongst young people that seeking help is not really going to help. It sometimes makes things worse for them because of the discrimination that they face.”

Dr Roshini Peiris-John (Photo: Supplied)

The bigger picture 

“The pain of one community doesn’t outweigh the pain of another community,” says Dizon. “What helps one community will help another.”

Because of course, when we have a discussion about the health needs of Asians in New Zealand, it’s important to recognise that our Māori and Pasifika whānau are also being left behind in a clear breach of Te Tiriti. But Dizon believes that these conversations about health can be had in tandem. 

“Māori and Pasifika are significantly affected [by unequal healthcare],” says Peiris-John. “So [Asian health] has to be looked at within the broader context of New Zealand’s pattern of inequity. 

“Each group will have their own racism-related issues,” she adds. But “there’ll be the common minority group versus majority group perception”. Peiris-John continues that race-based inequities affect all minority groups, and this is reflected in the fact that statistical health outcomes of minorities in New Zealand are consistently worse in comparison to the Pākehā population.

“I’d love to advocate for free healthcare for young people in New Zealand, irrespective of ethnic background,” Peiris-John says. Cost is also an issue for accessing care, she adds, and addressing that alongside the specific issues around ethnic discrimination would go a long way towards achieving more equitable healthcare for Asians.

Dizon says she’d like to see communities in Aotearoa working together to create appropriate approaches to healthcare that uplift all people. She notes that these conversations must be had in the context of “honouring Te Tiriti, and knowing we are tauiwi. 

“We can care about one community without taking away what has happened in other communities.”

Keep going!
Image: Tina Tiller
Image: Tina Tiller

InternetFebruary 10, 2022

Untangling the knotty social dynamics of online knitting communities

Image: Tina Tiller
Image: Tina Tiller

Knitting’s digital niche illustrates the possibilities and pitfalls of finding the community you need online. For IRL, Shanti Mathias explores what happens when knitting and social media collide. 

Start simple. Cast on. Take your yarn, slip it around your thumb, twist it onto the needle. This is how you make a stitch. Make as many as you need, and count them. You are ready to begin. 

To knit, you need to know only the two basic stitches, combined in infinitely various patterns, laid out on the page. Once you learn how to read a pattern, you will find that knitting may be intricate, or require concentration. But nothing about it is truly complicated until you go online.

In real life, knitting is something you make with your hands. It is totally physical. You need to be in a real place, and use real yarn. Unlike reading newspapers or playing board games or writing letters, there is no way to digitise knitting. What you make is something to wrap around a body where blood flows and nerves glint in silent soft places. Knitting tangles fibres – usually from living things, grown by a real sheep, a real cotton plant, a real goat – in patterns that are controlled and sculptured. Worn on your body, a knitted garment is a layer between you and the real air, preventing the bright heat of your body from escaping through your skin. 

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But as tangled as their fingers are in the fibres of the real world, knitters, like most people, use social media. Technology companies have created platforms used ubiquitously for everything from organising surprise parties to reporting neighbourhood thefts to selling a shirt that doesn’t fit. In the ordinariness of these communication forms, it is difficult to attend to the ways that these platforms shape interactions.

To understand some of the ways social media teaches us to behave, the knitting community – grounded in the physical world, but still online – is a way in. Specific aspects of knitting require attention: the controversies the community is reckoning with, to do with vaccines and allegations of racism, and the ways that individuals are invested in maintaining relationships after the fallout to these events.

When Renee Paku started learning to knit, she wasn’t thinking about social media: she just needed something to keep her hands busy. She was a single, pregnant mother with a seven-month-old baby. She’d left a life in Australia and moved back to Aotearoa to be closer to her whānau. Knitting captivated her. “It was the start of a beautiful thing and the end of the world as I knew it,” she says. 

Renee Paku sees knitting as a way to connect with those who came before, knitting within a te ao Māori framework. (Photo: supplied)

When her family members started complaining that her Instagram had too many pictures of luscious knitted sweaters and zig-zagging hats and not enough of her children, Paku started Auahatia, her Instagram account and pattern and yarn business. She has nearly 1,600 followers, and uses her platform to make a space for te ao Māori on Instagram that she couldn’t find when she started knitting. On Instagram, Paku wears bright pink lipstick, her moko kauae clear and dark on her chin, and posts videos explaining the connection between microaggressions and broader systems of racism. “There are some amazing people in our [knitting] community,” she tells me. But this is not universally true. “That space can get real racist real fast.” 

While there are big-scale issues in the knitting community that Paku is referring to, it’s useful to explain two of the most divisive recent moments in Aotearoa’s knitting universe. 

The first of these involves Maree Buscke, a shareholder of Skeinz, one of New Zealand’s only two wool mills that produce consumer-grade yarn (as opposed to, say, wool for carpets). In March 2020, the Skeinz company was accused of racism after a member of the private Skeinz Facebook group posted a picture of a golliwog they had knitted (an enduring issue in New Zealand). Though the picture was deleted by moderators, it was promptly reposted by the individual, creating an enormous backlash of individuals telling Skeinz that their Facebook group was perpetuating racist images.

Buscke later appeared on an American podcast called Unsafe Space, saying that golliwogs were not racial stereotypes but a tradition from Turkey, and that “social justice bullies” had destroyed her Facebook community. The saga was documented on an anonymous Instagram account. The lack of apology has led many knitters to decide that Skeinz is a racist organisation; yarn dyers scrambled for another source of undyed wool. (Skeinz did not respond to requests for comment for this article.) 

One reason Renee Paku started her Instagram is because her family was complaining they didn’t see enough of her kids. (Photo: supplied)

The second involves Libby Jonson (a friend of Buscke) and Alia Bland, two prominent New Zealand designers of knitwear and crochet. After it became clear that they were two of the three founders of Voices for Freedom, an organisation that opposes the government’s Covid response, many knitters tried to distance themselves from their patterns. (Jonson, too, did not answer requests for comment.) 

These controversies have international precedent: overseas, digital knitting communities have become significant flashpoints, with groups divided over topics of politics, racism, and diversity – and those are just the ones that get reported outside of the knitting community. 

These altercations take place online and grow in significance in part because digital disagreements are (at least semi) permanent; comments and arguments are cemented in place, somewhere down the feed. “In the digital world [tension] stays there,” says Philippa Smith, an associate professor of English and new media at AUT who has studied social interactions online. “In a conversation face to face, you might say something and that comment disappears. Online, other people can see and join in with those comments at any time.” 

These controversies aren’t unique to knitting. Instead, they are a marker of how a digital community is porous, a niche entwined with the attitudes and values negotiated beyond their edges. This contention – how to carry your beliefs about what is moral into all the spaces you occupy without diminishing the focus of a particular group – is rendered in particular patterns by the features of online platforms.

Given this, it’s worthwhile to examine how the internet creates, and feeds, certain kinds of group identity. The technical capacity of the internet – things like comments, Stories, direct messages, likes – creates modes of communication that produce a sense of belonging, says Smith. “It’s about self-identification and being part of an in-group, not an out-group. … We want to belong to groups, but we can have many different identities. Your family, culture, political beliefs – those are identities, and when you join the community of a hobby [like knitting] you are bringing your other identities along as well.” 

But how does social media become a space that encapsulates those many identities? For the knitting community – and the billions of other people who use these platforms to communicate every day – that story begins with how social media creates relationships. 

Jo Campbell runs a yarn dying business, which involves multiple applications of colour to raw wool. (Photo: supplied)

Knitters use social media because it is social – Instagram and Facebook are a way to connect with others and maintain friendships. “I’ve met some of my closest friends, my top-five humans, through commenting on Instagram posts,” says Jo Campbell, a yarn dyer based in Taitoko who runs the popular online shop YarnTherapy. These social relationships become a source of deep connection, reinforcing commitment to the community. 

Knitter Laura Vincent, who lives in rural South Auckland, has found the knitting community vital through lonely lockdowns. “Following other knitters on Instagram and TikTok helps me feel more connected in these isolated times,” she says. 

Friendships within the knitting community are a valuable source of connection and esteem. There’s a distinct knitting identity, rendered in a dialect that is hard for outsiders to understand – needle gauges, makes, second sock syndrome, and KALs (knit-alongs). With this comes a particular visual language, too: knitted pieces are photographed in a way to emphasise the drape and colour of a garment, and yarn is twisted into vivid bundles, ready to be purchased from a link in bio.  

This knitting identity is fortified by the encouragement and validation in digital spaces, providing support that knitters may not always find in the physical world. A progress photo of a sinuous shawl prompts reassuring comments – “I found changing colours in that pattern hard too!” – and a Story with a new colourway of sock yarn gets replies of fire and heart emojis from knitters eager to use it. “There’s so much evidence of encouragement in these forums – it’s a safe place to encourage participation and share results with each other,” says Angela Desmarais, a researcher whose masters thesis at AUT focused on digital knitting communities on Reddit. 

Knitter Laura Vincent enjoys the possibility of knitting to make garments like this loopy jacket, perfectly customised and unable to be found commercially. (Photo: supplied)

Knitters are overwhelmingly female, and the creativity of the craft is often dismissed as “women’s work,” says Paku. “Our work as knitters and dyers isn’t valued,” she continues; the obsessiveness and artisanship that knitting requires is underappreciated by those beyond the community. The association of knitting as a domestic task undertaken by women means that online spaces are crucial for many knitters to feel that their hobby or livelihood is given the consequence it deserves.

For knitters who don’t fit the standard mould – little old ladies creating tea cosies, let’s say – the capability of social media to link people who would otherwise be separated by geography is particularly powerful. In-person knitting groups are not always accessible. Campbell, the yarn dyer and knitter, points out that meetings during the day are out of reach for knitters who work full-time or have small children, as well as those with disabilities or chronic health problems.

Online though, the knitting community is more flexible: friendships are built through commenting on a post, or sharing a picture of a project – a form of connection that can fit into a child’s nap time, or while waiting for dinner to cook after work. Social media broadens the pool of people to connect with, and makes it easier to determine shared identities: you might be the only queer socialist knitter you know in real life, but online, there are people just like you. 

And a friendship formed online often becomes a friendship in person, or vice-versa. At yarn events like markets and retreats, there are opportunities to meet other knitters who you’ve been following. “I can think of 20 or 30 people who have met for the first time in person at a yarn event and it’s this instant beautiful relationship,” says Campbell. It works the other way, too – Campbell points out to me that after meeting people in person at knitting events, the relationship continues online. 

Social relationships help keep knitters online and connected to each other; strands weaving around many people and pulling them tight. But these communities are also fuelled by the intense care knitters have for their craft – the individual stories of why a person started to knit. 

“Our firstborn died during birth, and it was just awful,” says Campbell. That was nearly 18 years ago, and while she’d always loved making things with her hands – she taught knitting and embroidery classes throughout her law and arts degrees – she threw herself into it after her loss, not ready to go back to a “high-powered policy job”. She started making silly hats for babies, brightly coloured bananas to perch on small heads, and learned how to dye because organic pure wool suitable for babies was not available in the bold colours she wanted. Slowly, that business evolved into her yarn store, the story of her family tinting the fibres. 

For Paku, knitting is a way to connect to her whakapapa. “My great grandmother and her family ran the biggest [shearing] gang from the Mahia down to Masterton for three generations,” she says. “There’s stories of nannies taking the raw fleece and knitting it with some sticks they’d found from a tree outside, they make these big beautiful woollen jerseys famous up the East Coast.” She brings that history to her Instagram feed. 

Elizabeth Nihoniho’s small pattern business relies on the generosity of loved ones who test and model patterns. (Photo: supplied)

Social and personal ties add consequence to digital knitting communities. So does something else: the fact that many knitters rely on digital platforms for their livelihoods. 

“Six years ago, [yarn dying] became my full-time gig,” says Campbell. While she attends yarn markets in-person, the bulk of her sales and marketing are online, via Instagram and her website. This is labour-intensive, small-scale production, completely entangled with the rest of her life. “There’s not a month where my kids or husband haven’t helped out,” she says. And each skein of bright yarn she sends out, potent with possibility, was enabled by the internet. 

Running a small business that depends on a niche audience makes digital platforms all the more essential. “Being online is vital,” says Elizabeth Nihoniho of Amikihia Knits, a pattern maker. She largely relies on Instagram for marketing. To differentiate her patterns, and to connect the act of knitting to the whenua, she and her husband give each pattern they sell a te reo name, and write a story to explain where it comes from. The hours of careful labour that go into producing each pattern, which are sold via knitting website Ravelry, also require test knitters who Nihoniho usually finds online. 

The nature of these small businesses, with yarn made by knitters’ own hands and patterns modelled on their own bodies, makes them intensely personal. That sense of individuality is carried online, especially because the digital presence of the business and its owner are often the same. For knitters, this means that friendships, identities, and often livelihoods all occupy the same spaces online. This makes it important to knitters to use their businesses as a place to bring the political causes that matter to them.

For instance, Renee Paku, the knitter who is making a space for Māori in the digital fibre community, gives a portion of the proceeds from the patterns she sells as a koha to causes that matter to her. The first hat she designed was for Ihumātao. “I had visions of nannies sitting there with their mokos and teaching them to knit this hat that had meaning to the kaupapa they were doing,” she says. Every skein of yarn she sells is wrapped in a sleeve of paper containing her logo, a stylised tino rangatiratanga flag and the words ‘Land Back’. 

The capability of social media to erase the boundaries between social, financial, and personal identities makes the reaction to controversies swift and emotive. In their potent, coiled digital community, knitters have the potential to be no different than book bloggers attacking the author of a book deemed racist, Facebook users encouraging each other to “mow down” cyclists, or TikTok users doxxing a man for being bad at dating. Patterns of frustration, anger, and controversy can be quantified throughout the social internet. Because social media companies profit from both positive and negative engagement – any form of attention, after all, can be monetised – the design of these platforms themselves enhance controversy

The effects of online controversy in the knitting community have rapid, real-life implications. After learning via a private shoulder tap from a friend that Libby Jonson, the knitwear designer, was involved in Voices for Freedom, Campbell stopped bringing samples of Jonson’s patterns to in-person yarn events. As Jonson’s involvement in VFF became more widely known, the effect on the knitting community was splintering. Yarn makers who had ensured that their yarn could be used for Jonson’s patterns had to decide whether continuing to do so was an endorsement of her political position.

“It was just awful to see people who had worked so hard to build businesses be absolutely wrecked,” Campbell says. 

In the knitting world, complex, wearable patterns – like this cardigan designed by Elizabeth Nihoniho – are prized. (Photo: supplied)

The controversy also had an impact on devoted knitters without business connected to Jonson. “Being anti-vaccine, and then anti-mask and anti-lockdown, is so polarising,” says Jen, a knitter based in Te-Whanganui-a-Tara (Jen’s surname has been withheld at her request). She had met Jonson, peripherally, at some knitting events, though she didn’t know her well. While she doesn’t feel tainted by the previous Jonson designs she’s made, they present a conundrum. “I’m considering unravelling [my Jonson-designed cardigan] … it doesn’t feel good.” 

The Skeinz racism controversy, now more than 18 months old, also continues to ripple offline. Knitters who distanced themselves from the company continue to seek out alternative sources of yarn. Last year, Campbell and a group of friends started a yarn event called “Woolington”, after Capital Fibre Fest, a yarn market in Upper Hutt, invited Maree Buscke and featured the work of Skeinz. Their alternative event, while much smaller, is “unapologetically anti-racist, pro-rainbow, pro-minority, pro-science, pro-inclusion,” Campbell says. Vaccine passports will be mandatory when it’s held this year. 

In wrestling with how to respond to online controversy, knitters are not alone. Many people will have witnessed the aftermath of strife in their digital niches. Did your flat have to make another group chat without one flatmate in it so you could complain about their inability to clean up? Did your community Facebook page get accused of suppressing non-white members? The knitting community and its specific concerns show the way that digital platforms can generate both community and controversy. 

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Given this, it is easy to wonder why people persist with online communities – and indeed, in the process of reporting this story, knitters told me of others who had stepped back from social media because it was too stressful. 

But in their commitment to staying online, knitters offer a blueprint of how digital communities can respond to controversy. “I make it sound terrible and awful but it’s not,” laughs Tash Barneveld, a knitter who ran independent yarn store Holland Road Yarn Co in Wellington until it closed last year. She’s just detailed how individuals hash out differences when ideological disputes in the knitting community arise. But it’s the power of constructive digital connection that sustains her. “You have to point to the difficult conversations, people are trying to deal with [drama] and look after the community.” 

For some members of the community, calling out issues like racism, loudly and explicitly, is essential to maintain the integrity of those communities, regardless of whether it makes people feel uncomfortable. For Renee Paku, who takes her responsibility as “the only loudmouth Māori on [knitting] Instagram” seriously, this often means photos posted on Instagram with comments about allyship and capitalism, as well as explanations of her latest intricate shawl or stylish sewn skirt. 

In one video, she stirs her coffee, wearing light-up cat ears that do not detract from the serious subject matter. “Deep fucking breath,” she says, before explaining how a comment belittling the Māori language in a Facebook knitting group is a microaggression that signifies broader systems of racism. She tells her followers to be courageous in noticing and calling out racism in their lives. “By not stopping [these microaggressions] in real life, you give people the authority and the fucking cheekiness, to be honest, to be doing it online.” 

 

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Paku’s willingness to call out racism when she sees it comes at a price. “I’ve made some enemies,” she tells me. “I’ve had people at markets refuse to have a stall next to me because I called them out on their cultural appropriation. I don’t care, it’s people like that that don’t show the really beautiful side of the knitting community.”

Making online spaces positive and inclusive sometimes means drawing hard boundaries, knitters say, although the tension between a need for boundaries and a desire for inclusivity is a difficult line to walk. Campbell tells me she’s been part of groups that have imploded over different approaches to vaccinations, for example. “We wanted to make space for everyone but we need to make space for the disabled and vulnerable and we can’t do it if we let [anti-vax] people in.” 

To avoid the stultifying effect of engaging in controversies head-on – not to mention the vitriol and financial cost – others in the knitting community discuss problems in private. “The people in the industry I talk to a lot and consider good friends, we talk in the background, because it’s so exhausting, it’s so draining,” says Barneveld. Research into digital platform design and the fury it generates backs this up: people prefer to respond to arguments in private and smaller groups. 

This decision to withdraw from controversial spaces means that digital identities don’t have to take over people’s whole lives. Nihoniho’s husband Antony, with whom she runs her business, has heard her reactions to contentious events online. “We’re clear about our values … We are passionate about indigenous people, but we’re not exclusive. Those are our values. [The controversies] that have blown up could take a lot of energy – the business is important but [isn’t] the only part of our lives.” 

In trying to embrace inclusivity while keeping some people out, focus on what is positive while responding to divisive political issues, and let their businesses represent their beliefs while not allowing the businesses to take over their entire lives, the knitting community runs up against some inherent contradictions of social media. These ubiquitous platforms are a way to be with people and not be with people at the same time – so of course genuine relationships can be formed, and of course the online world is not free from the values and politics of the physical world, creating controversy. 

On social media, people as real as you exist in the flat boundaries of rectangle screens, and often images and language are enough to feel strongly committed to those you interact with – enough that it stings when you realise that sharing an online space does not mean you have other values in common.  

Given the many stressful elements of being involved in an online community, many knitters try to ensure that their digital worlds are as positive as possible. “If I stay in my happy little bubble I don’t need to see how far we have to go as a knitting society,” says Campbell. While she feels that it’s important to talk openly about her values online, she seeks solidarity in a private weekly knit night, a Zoom with close knitting friends.

Jen, a Wellington-based knitter, is keenly aware of how digital politics affects knitting communities. (Photo: supplied)

And of course, there’s always the option not to bring your hobby and all its political, social, and financial implications online. “It’s easy to get lulled into the sense that the online community is representative of all the people who knit,” says Barneveld, pointing out that this is not the case – there are many others who find joy and community in knitting without needing Instagram accounts and Facebook gossip. 

Is there a way to acknowledge how power, money, and privilege play into the way knitting works, while still letting it be a hobby that is serene and satisfying in and of itself? Jen believes that she can have it both ways. “It’s not an either/or scenario,” she says. “Knitting is a truly relaxing hobby to me and the elements of power, class, privilege, accessibility are inherently present in the ‘craft’ sphere, just as much as they are in every other part of our lives.”

Vincent, the knitter from Auckland, echoes this. She lists the political issues she thinks about when she knits: Who made the yarn? Is it affordable? Who models the pattern? Is it size inclusive? Can she afford to support a small business, or will she choose to use mass-market or secondhand yarn? What are the environmental effects of yarn made from sheep’s wool, or plastic, or cotton? But she doesn’t let these questions paralyse her, or prevent her from knitting.

“There is so much that is churning in the knitting community, and I don’t know what the answer is,” Vincent says. “[But] it’s important that everyone … tries to radically change what they’re doing so that inclusivity is built into it.” It’s her love of knitting and enthusiasm for other people who knit that allow her to keep creating when the conversations get knotty. 

Whether they are processing frustration in a private group chat, explaining allyship on Instagram, starting an alternative yarn event, or writing stories to accompany a pattern, many members of the knitting community are trying to make the space more open to Māori, young people, queer people, and disabled people. They want to change this community because they love knitting, and they believe that it matters. Online, and offline, there is so much hope for. “I want to do some good with knitting, this art that is simple, ancient and fraught as well,” Vincent says. 

Every knitter I spoke to for this piece would agree with her. With some teaching, or the help of a YouTube video, even a total knitting beginner can make something they’re proud of, and wear it on their body or post it on Instagram for some of the world to see. But as easy as it is to knit, it’s also easy to screw up. Fumble the needles and drop a stitch, and your piece will be lumpy. Purl when you’re meant to knit and make the pattern uneven. Stitch an extra row and one side of your jumper will be too long.

But every mistake can be fixed. When something goes wrong, all you have to do is find the mistake, unravel the stitches, and start again.