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a hand holding a shopping list above a shopping trolley that contains milk bananas and spinach
It’s rare, but dangerous, for food you bought to contain contamination (Photo: Getty Images)

SocietyDecember 14, 2022

Food allergies hit Pasifika communities hard – not least in the pocket

a hand holding a shopping list above a shopping trolley that contains milk bananas and spinach
It’s rare, but dangerous, for food you bought to contain contamination (Photo: Getty Images)

More Pasifika people are being hospitalised for food allergy reactions than Pākehā, and one doctor is calling for food manufacturers to decrease prices on free-from products.

Imagine having to pay extra money for basic food items because you have a medical condition. 

According to new data, New Zealanders living with food allergies are paying an average 35% more for “free-from” and vegan (egg and dairy free) food products than for their standard alternatives.

Food allergies can be present in children from a young age and become a lifelong condition, with the most common allergens being seafood, peanuts, eggs and dairy.

An allergic reaction to food can involve mild to moderate symptoms such as hives, swelling around the face and upset stomach.

However, some people will have much more severe reactions such as anaphylaxis, which leads to swelling of the tongue, difficulty breathing and collapse, and needs immediate treatment (such as an EpiPen) to avoid being fatal.

Dr Amy Sevao is the chief executive officer of one of Aotearoa’s largest Asian food manufacturers Old Country Food and as part of launching her new line of free-from food, she has been analysing the price of supermarket food products, which are free from common allergens or vegan and the data shows that the retail cost per 100g is significantly higher when allergens are removed.

Dr Amy Sevao would like to see food manufacturers pricing their free-from products in a way that’s more affordable. (Photo: Supplied)

“Consumers pay an average of 35% more for a free-from food product,” she says.

“The packaging sizes of free-from products were also around 40% smaller than their counterparts, which suggests this group of consumers may need to be vigilant when calculating the value for money of their purchases.”

She understands why it costs more. “It takes longer for the free-from products to be made and it’s more expensive to process,” she says.

What Dr Sevao has also noticed is that hospitalisations for severe food allergies have increased across the board, but for Pasifika people it has tripled.

“This could be attributed to genetics, dietary food patterns or environmental factors,” she says. “However, it’s particularly concerning to see the sharp rise in the number of Pasifika patients admitted to hospital with food-induced anaphylaxis in recent years.”

Dr Annaliesse Blincoe, a specialist in paediatric immunology and allergy, gives insight into the food allergy population at Starship Hospital on the Goodfellow podcast. “We know food allergy is so multifactorial in terms of genetics, epigenetics, gut microbiome, vitamin D, there’s so much that is being played into why so many more kids may have food allergies,” she says.

Lettie Brenda Iseli is an allergy educator with Allergy New Zealand and confirms that data shows the highest rates of food allergies and of hospital admissions for food-triggered anaphylaxis in New Zealand are in Asian and Pasifika people. Māori and Pasifika people are significantly more disadvantaged by allergic diseases and the associated risk of anaphylaxis.

The rise in allergies that require more expensive food products unfortunately coincides with a dramatic rise in the cost of all food. Government data shows food prices rose by 0.9% in November and are up to 8% on the same time last year.

Auckland Hospital and Starship Childrens Hospital (Photo: Phil Walter/Getty Images)

Dr Sevao’s concern is that the cost of living is already hitting Pasifika families the hardest.

The implications for this long-term trend are especially concerning for those on a tight budget who will have limited choices of foods they can potentially eat, she explains.

Dr Sevao has seen the impact of allergies on families firsthand – she has a Sāmoan nephew with a peanut allergy.

Nathaniel Sevao was only six months old when his parents noticed his weight was dropping. They were advised to feed him fatty foods such as peanut butter but after giving him a teaspoon of peanut butter, their child broke out in a rash and had to be rushed to the emergency department.

Like many parents of children with food allergies, the Sevao family are very careful when going to restaurants as some meals are cooked in peanut oil or contain hoisin sauce, which sometimes has peanuts as its base. “Even some Pacific foods such as chop suey I have to be careful with as it’s sometimes cooked in peanut oil,” she says.

Nathaniel’s parents would like the EpiPen (a pre-filled syringe kept on hand to treat severe allergic reactions to food) to be subsidised as it costs around $120, and only lasts one year.

And Dr Sevao would like to see food manufacturers look at pricing their free-from food products in a way that’s more affordable. “I think it makes good financial and commercial sense to have something at a good price as you’ll get more eaters, which will equal more revenue,” she says. 

For six-year-old Nathaniel, he’s learnt that the yellow packet of M&M’s is a big no and to only go for the brown packet, which he happily enjoys.

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Calum Henderson
— Production editor

This is Public Interest Journalism funded through NZ On Air.

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OPINIONSocietyDecember 14, 2022

Storm clouds and rainbows – what it’s really like to parent a trans child

Image: Supplied
Image: Supplied

Many with no experience of raising trans children seem to hold a lot of views on it. That’s why Julia de Bres interviewed parents of trans kids about their actual experiences, and pulled those stories together into a powerful resource. 

Before I started interviewing parents of trans kids, I drew a picture.

In it is my child, bright, smiling and pink.  Like the Care Bears of my childhood, she emits a rainbow beam from her tummy to fight evil, and there is a glow around her as she brings her light into the world.  I am looking at her in wonder, but also at the dark cloud behind her.  As she gazes to the future in all her courage and sparkle, my eyes are on the impending storm.

As a parent of a trans child, I am very aware of how the experiences of parents like me are depicted in public discourse.  The dominant story portrays parents reacting to their child’s gender variance with shock, then slowly moving to acceptance via a painful series of phases akin to a grief process.

Parents of trans kids are asked to perform this story on the regular to people who turn to us with a curious gaze: “When did you first know your child was trans?”

I know the story is more complex and varied, because I’ve been living it for the past ten years, and because I’ve watched other parents do the same in an online support group.  Here I see parents having a wide range of experiences, positive and negative, with one thing in common – an unwavering commitment to support their kids.

If parents of trans kids only hear negative stories, they have little reason to hope for better.  I wanted to ask them how they really feel about parenting a trans child – how they navigate the hard parts and how they live their lives with joy.

I recruited parents of different cultural and social backgrounds – Māori, Pākehā, Pacific, Asian, fathers, mothers, non-binary parents, queer and straight – and I asked them to draw their experience of parenting a trans child.

Across the drawings, one visual metaphor kept recurring, which I recognised from my own: storm clouds and rainbows.

Rainbows were a recurring motif in the illustrations by parents, including this one by Julia de Bres herself. (Image: Supplied)

The storm clouds represented the negative attitudes towards trans people that parents encounter in politics, media, and society.  For some, these attitudes are remote, in the form of laws protecting trans people from discrimination internationally being removed, misinformation on social media, and attempts to reduce access to gender-affirming care.  Others encounter them closer to home, in their interactions with family members, medical professionals, and schools.  Even within a supportive immediate environment, these attitudes remain a foreboding presence, one parent saying she was “always waiting for the ball to drop”.

There was darkness in these stories, but a different kind of darkness than others imagine.  The problem for these parents was not their child’s gender – it was everything around them.

The rainbows represented the positive aspects of parents’ experiences.  In affirming their child’s gender, parents noticed a leap in the happiness of their child, developed improved relationships with them, and experienced personal growth of their own.  One described her child as “an effervescent soul … a beacon of light drawing people towards him”, another as a charismatic “force of nature” who “takes people with her”.

Despite the challenges they face, the parents painted an uplifting picture of their experiences, vastly different from how this is depicted from the outside.  One commented: “this is going to be a lifelong journey for me and I’m never going to be at the end of the rainbow, but to have that spectrum of colour around me – I think it’s beautiful”.

Another parent’s illustration from Julia de Bres’s project. (Image: Supplied)

The thing about parenting a trans child is that the weather just keeps on coming.

I have kept in touch with the parents I interviewed.  Some kids who were doing well at the time of the interviews have since faced really hard times and some who were struggling are now flourishing.

Given the prevailing social environment, trans kids will face challenges.  Parents can help kids weather the storm, forming an umbrella of protection that fosters their capacity to get through difficult periods and back into the sun.

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Gabi Lardies
— Staff writer

I’ve been through my own storms with my child, but there have been a lot of rainbows too.  Sometimes it is hard to separate them.  When she shines her brightest, the light seems more brilliant against the backdrop of the darkness we’ve seen.  I think that’s why one of the parents, who drew a rainbow without clouds, observed “you can’t have a rainbow without storms”.

It’s this complexity of experience, the ultimate hopefulness, and the fierce love of the parents I spoke to, that I wanted to share.

To do so, I created an illustrated resource with a colleague, called Storm Clouds and Rainbows: The Journey of Parenting a Transgender Child.

This resource was developed in partnership with the Rainbow Support Collective, a collaboration between rainbow-led organisations across Aotearoa, and supported by The Tindall Foundation, and is available to download here.

I hope it will help parents of trans kids feel seen and supported.  I also hope that it will provide insights to anyone who wants to better understand this experience – the storm clouds, the rainbows, the fog, the snow, the gentle breeze… and everything in-between.